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Forums Serious Talk Why being "So ADHD" isn't a joke

Donator — She Posted 5 years ago ( 2020/02/20 21:12:30 )
Note: This thread talks about OD, suicidal thoughts, etc. If that's triggering, I probably wouldn't read on. Also, I'm sorry this is super long. xD

If anyone here struggles with severe ADHD, you'll probably bristle a little at this joke yourself. In general, no mental health issue should be a joke that is tossed around like it's something light and funny.

For almost 5 or 6 years, I'd been diagnosed manic depressive eventually leading to a bipolar diagnosis. Both, if you struggle with them, as super debilitating diseases. And these are things that people literally fight with day to do. Getting up out of bed, taking medications, understanding when your emotions are emotions that are right for the situation or if you're overreacting. But what's worse?

For women, ADHD can get mistaken for these diseases. Because not every mental health issue presents the same in men as it does in women. For years, I'd been on anti-depressants and stabilizers I needed for bipolar. Lithium being one and always ended up sick with intense serotonin toxicity. I even had a slow OD on Welbutrin which was terrifying. Imagine trying to eat, but every tie you do you get sick, just the thought of food makes you ill, so you can't even think of touching it, you go three days without food. Your body is heavy, your head is aching, you're having heart palpitations... It's terrifying. Eventually, your doctor says 'let's get you off this slowly.' because the withdrawal was almost just as severe. And I was at a point of isolation and illness that I honestly was considering suicide, so my doctor had my mom watching me. Just in case.

For a year, I went unmedicated because I was terrified to take medications. Even aspirin for migraines was something I could hardly choke back. I never realized how horrible my mental health issues were until I was in conversation with dates and I hear them talking, I'm making eye contact and nodding but... What are they even saying? By the time it's my turn to respond, my mind had wondered on some long tangent that I spaced out mid-conversation and I had no idea where the conversation was anymore.

This got progressively worse, affecting my work. And working at Starbucks where you take orders and make drinks, obviously this was an issue. Someone ordered a simple soy latte, and for some reason, I know they're speaking words, but the words sound oddly alien and far away. They had to repeat their order 4 times to me, and at this point, are really frustrated. It's a simple drink, right?

During this time I was also dealing with a sudden onset of a nervous system disorder. PPPD (Persistent postural perceptual dizziness) that would get so bad I was passing out. And the worst part about this? Though it's not caused by anxiety, anxiety can actually worsen it.

So here I am, an apologizing anxious little ball of issues, trying to live my life and I can't even have normal social interaction or take a simple order without somehow spacing or retaining information. My boss was over my shoulder almost every second. And everything reached peak and I passed out at work.

It took a hospital trip before I went to a psychiatrist who heard my diagnosis and pretty much told me what I now know. ADHD doesn't always present typically in women, where you're bouncing off the walls, going 90 to nothing. It can present as a woman simply seeming to space out and "daydream." And unfortunately, because of how women are seen as ditzy and dreamy... It can be overlooked. She told me she wanted to try me on medication. A very low dose. She said if my bipolar diagnosis was correct, it'd cause panic attacks and to call her office and stop taking the med immediately. If I could focus, and find more energy and not have panic attacks, then I was actually never bipolar, to begin with, and I fell into the cracks.

Fast forward to now. Previously in high school, I was always spacing and daydreaming in class, my grades suffered. And I fell behind, it was honestly awful. But in university, medicated, I am pulling every grade I aim for, and able to talk to people and be "normal."

But one day, I forgot to refill my ADHD meds. No problem, I'll pick them up the next day after class. It wasn't until then that I realized just how horrible my ADHD actually was.

I'm borderline catatonic off my meds. Like yeah, I'm moving and I'm living but it feels like I'm floating somewhere behind my body. And no matter how much I try to hone in and focus, bring myself to the present I absolutely can't. So I go home and ask my mom to pick up my meds on her way home. The next day I take my meds, and I can barely remember the whole day before. Like I knew I went to class, I knew we talked about cool stuff in biological bases of psychology... But what was it we talked about? Which bus did I take home? When did I even get home?

Previously, I was that person who so easily joked about being ADHD, or bipolar, etc. But it's started to hit me how much of a joke it isn't. I am literally not even human without my medications, and even though that's upsetting in and of itself... ADHD is immensely easier to manage than bipolar was.

I do have depression with my ADHD, an annoying little comorbidity but it is what it is. But it's so much easier for me now. I'm getting back into what I love. I'm focused. I'm working towards 2 majors and passing my first year with flying colors. And my nervous system disorder? It got quite a bit better once I got on my meds, and with physio and a lot of patience and doctor's visits, I'm almost normal.

I'm not bringing this here because I wanted to rant and rave, or scold. But this is a serious discussion, and it's been bothering me lately how easy it is for people to joke about things they don't understand or struggle with. And for me, I can't handle those jokes without a slightly bitter resentment towards it.

I don't know if anyone else here struggles with this, if it's just me being overly sensitive. But now when my friend joke about it, I straight up tell them that ADHD and ADD isn't a joke. And it's actually really serious. Does anyone else find themselves having an internal struggle with these conversations?
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Donator — Frog bless Posted 5 years ago ( 2020/02/20 21:35:28 )

I also went undiagnosed with ADHD until I was in my late 20's (and even then I self diagnosed by doing lots of research on why I am this way and then went to see a doctor to confirm). It's unfortunate that the first doctor started with bipolar meds. Lithium is a difficult drug. Though it's not uncommon for people suffering from bipolar disorder to also have ADHD. Anyway, it never hurts to get a 2nd opinion. Especially since we're really only barely starting to scrape the surface on mental health.

As for other people making comments in passing... it doesn't bother me too much. Ultimately I look for the intention behind their statement. They usually don't mean any harm. That being said if it DOES bother you, I'd calmly and sincerely explain to them why. Once they understand it's hurting you they should stop. If they don't then you can get mad. (ಠ ∩ಠ)
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Donator — She Posted 5 years ago ( 2020/02/20 21:43:33 )
@Priestess of Pie: I'm approaching my mid 20s and I find it incredible how doctors disanose but don't seem to truly listen. My psychiatrist doesn't have a lot of time because she's a gov-funded one (hospital set me up with her when i didn't have supplimentary insurance) and so she gets paid via my medicare. But even in the small amounts of time, she listened, barely spoke. It made me feel so weird but she just let me talk, and then actually said "her's what i think." and wasn't cocky, or snide... And it's true we are barely just starting to understand the causes behind psychological issues. My university has an amazing psych department, and it's one of my majors, so I'm learning to advocate a lot better.

Sometimes I do take the meaning. But I guess because people often still stigmatize the actual illness when presented with it, it feels like it's not right to joke yet. I've had many people tell me my illness wasn't real, that it doesn't do anything I'm just faking it. So with those mindsets so readily out there, I have a hard time taking their actual intention rather than the literal... if that makes sense?
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Donator — Frog bless Posted 5 years ago ( 2020/02/20 21:52:52 )

@scribartz: There are people out there that don't believe in mental illness, yes, but honestly a lot of them have their own unresolved issues (hence the denial). You can try to educate them if you're close to them, but I wouldn't bother with a stranger because it's not worth your time or energy. Things are slowly changing and people are a lot more understanding than they used to be. Probably due to people being more open about it. When people realize friends and family have been dealing with these disorders, it puts it into a different perspective. If you have friends or family that still insist you are faking it, I would start to distance yourself from those people.
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Donator — She Posted 5 years ago ( 2020/02/20 21:59:07 )
@KDA Drew: A lot of times, you can end up with doctors who don't want to try and diagnose based on family. If you are certain your diagnosis is wrong, just approach your doctor and say, look, I still have this issue. And you're overlooking it. Please listen. I have hard to learn really fast to be my own advocate, and to really make myself heard with some doctors. Hopefully you're not finding your work and such heavily impacted?


@Priestess of Pie: This is very true. I do try and educate on what it's like for me. Honestly, even though ADHD is still only treatable and not curable, it's much more manageable than my bipolar diagnosis was so there's an intense relief here. (no if my meds are short until I can get them adjusted, i work at a coffee joint. AHHHH.) I also do distance myself from damaging people. Anyone who says things like that, I do try to avoid. But I think part of it is also my employer. (NOT SB themselves) but my store manager (previous, she's at another store now) made comments about my issues being all in my head. Contacted corporate but SB is more likely to fire all the low level partners than a SM is the SM sucks. =\
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Donator — Frog bless Posted 5 years ago ( 2020/02/20 22:15:44 )

@scribartz: Promoted to their level of incompetence. A frequent occurrence in retail and food service. Quite unfortunate. Hopefully it doesn't cause too many problems at work as you seem to have found medications that do help you.
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Donator — She Posted 5 years ago ( 2020/02/20 22:24:40 )
@Priestess of Pie: Not usually. Now if I'm having a bad day, having my NSD diagnosis is something I can dump it on because I had to see specialists for it and SB corporate knows about it. It's easier to blame the neurological issues than ADHD because of how it's perceived in modern media and the bandaid idea of "diet, exercise, and coping skills can make it better without meds." when to a certain degree, that's not entirely true.


@KDA Drew: Oof. I get the fidgeting. So far that way I deal with that is there is fidget pens, and my grandmother got me a fidget cube for xmas. that, and just clicking my frixion pens.. xD In other words finding outlets for the fidgets helps. (when my meds first kick in, fidget is high. eases up after.)
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Donator — They/She Posted 5 years ago ( 2020/02/21 00:08:56 )
。・:*:・゚,。・:*:・゚。・:*:・゚,。・:*:・゚ 。・:*:

@Scribartz: I will say that I am someone who has been diagnosed since I was much younger. My mother saw weird tendencies with me and took me to see my primary physician when I was 9. By the age of 10, I was fully diagnosed and on medication. At 11 I was taken off of the medication. I can clearly remember my mother crying and being so proud when I was taken off of the medication at a young age. At this time the diagnoses of ADHD and ADD still existed so I was diagnosed with ADD.

I have to admit I was able to get through high school and a majority of college by staying extremely busy. When it comes to my attention I will that void with being involved as much as I can with a lot of different stuff. Whether this was many classes, sports, theatre, jobs, studying, drawing, being online. I did so much and it was insane.

Now that I am back on medication, one that is a struggle to get every time I have to refill it but it helps me so much, I can both relax and get a lot of tasks done. I cannot begin to explain the first time I got on medication to help with my attention again. ~Sentimental storytime~ I was taking a summer online course because I needed it to complete my major. I started the meds and it had been a few weeks so it finally had fully entered my system. I sat down to read an article to complete an online discussion question and I was able to get through the article without having to reread a sentence five times. Tbh I ended up crying because it was such an amazing feeling.

I used to not advocate for medication, I thought alternative methods should be tried before going to medication as the answer. But, medication sometimes is the actual answer while simultaneously working with therapists and psychologists.

Sorry I went off on a personal tangent and told a little bit of my life story, but I am so glad you are where you are today! It sucks to get help later in life, but you got it and you are doing amazing. There are always more steps to take but the fact that you are here and have overcome so much already, that is a great feat and I hope you are able to keep making these great strides <3

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Donator — She Posted 5 years ago ( 2020/02/21 01:59:01 )
@kaichoukai: No, no! I actually liked reading I'm not the only one struggling. I actually still can't focus on reading, which sucks because i really used to love it. But now reading pages of story, and I still can't retain a single thing. I just started my meds maybe around this time last year, and initially the lowest dose was prescribed, then we took a step up to 2 or the lowest dose a day, to her taking me to 27mg and once a day, which hasn't helped me at all really... She said if I need to have more, if I'm struggling to take the bigger pill dose in the AM, and the lower at lunch, but I just have that fear of the feeling of when I had my OD, and can't bring myself to go higher? i know I need to really go back and have my meds assessed, but making the time for that between school and work, and then like, having that fear I just don't want to. xD

But thank you! I'm hoping to conquer my BS and just get to where I need to be. But I'm so happy to feel like... Normal? I never knew how bad I was until I missed a dose. xD (the med my psych put me on doesn't stay in your system or build up. It's a slow release that is in your system, and then once it's out it's out. Helps make sure I sleep normal too.)
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Donator — they/them Posted 5 years ago ( 2020/02/28 08:16:00 )
I was diagnosed with ADD as a kid. I lack the hyperactive element most of the time as an extremely low energy person and years of suffering with untreated depression that was mistaken for bipolar disorder. :vanora_upsidedown: Currently, because my body violently rejects most ADHD meds (they make me too jittery, or make my lips crack and bleed regardless of how hydrated i am and how much biotene i swash through my mouth), so I'm only being treated for the depression.
It kinda sucks because I get side tracked easily and I don't have much energy, and when you start 6 tasks and finish *maybe* one, everything can feel overwhelming.
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Donator — She Posted 5 years ago ( 2020/03/3 21:14:32 )
@faerie: So far I've been very lucky that only headaches have been my side effects aside from dry mouth and slight appetite change, which I can all deal with. But it's so unfortunate that you've been having these terrible reactions especially since I know the struggles you speak of. There have been odd and end diet, etc. regimens that have been rumoured to help with management, but again, mostly just rumours. xD Hopefully it all gets better though, and you find something that works for you? I know I had the jitters when I first started them but they eventually went away.
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Donator — Frog bless Posted 5 years ago ( 2020/03/3 21:49:54 )

@scribartz:
@faerie:

You may want to talk to your doctor about trying Strattera. It's a non-stimulant medication for ADHD. I also got the jitters on the normal stuff, but I do pretty well on this. It also helps with depression. Only problem is that it can be very expensive if your insurance doesn't cover it. Even the generic. For me though it's worth the cost.
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Donator — She Posted 5 years ago ( 2020/03/3 23:06:55 )
@Priestess of Pie: My jitters eventually went away for the most part. Not I just want to be more physically active which, mentally I've been wanting to do anyways. xD Not jittery just more energetic and able to focus and get excited about mundane things.
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Donator — Frog bless Posted 5 years ago ( 2020/03/3 23:23:17 )

@Scribartz: That's good then! I did try for a while to use the stimulants but I never could get over the jitters, plus it wore off mid day and I was just a mess.
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Donator — FluffyBoi Posted 5 years ago ( 2020/03/3 23:33:51 )
I was diagnosed at around age 4 or so, I think. The two brothers before me also have the ADHD diagnosis(one is mostly hyperactive, the other mostly inattentive and me, I'm combined). I never had to take meds for it since I started on therapy as soon as I received my diagnosis. That said, some people still think having ADHD is being hyperactive as hell and bouncing off the walls as they say. Then there are those who insist that it's some crap doctors made up so Big Pharma can sell their fancy pills and etc. I remember a friend of my brother's telling me that ADHD was fake, that his brother was diagnosed, but was cured when he entered the military(and also by being smacked in the head apparently). Anyway, while yes, I've definitely calmed down(family used to call me Energizer, after the Energizer bunny), I do still struggle with concentration at times. If someone just doesn't catch my interest, I'm unlikely to focus on it. It doesn't have to be the most amazing thing in the world, but if it's taught or done in a way that catches my eye, then it's much easier for me to focus on it. Take reading. I absolutely hated reading as a kid. I remember back when the Harry Potter books came out, my family had to force me to sit through a reading of the first book, in Spanish no less(I hated everything in English as a kid). Now, I'm a total book worm. I still fidget, of course. I hate having to stay still for extended periods of time. But compared to how it was years ago, I'd like to say I've improved. Some people don't even believe me when I tell them I have ADHD.
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Donator — they/them Posted 5 years ago ( 2020/03/4 07:01:03 )
@Scribartz: My side effects were worse than not being able to focus, like if you put them on a cost/benefit scale. I'm okay right now, my head is a bit clearer just being treated for depression, but I know in the future I'll have to revisit it. (my post to Pie will also address this; see below)

@Priestess of Pie: I haven't heard of that medication and while I am depressed, right now the medication I'm on for it is amazing and, me and my doctor have an agreement we will revisit treating my ADD when I'm ready, and I'm not quite there yet. But I'll mention Strattera to her if/when it comes up again. I have good insurance at least right now, so it could be a viable option for me, but a lot of antidepressants give me mega bad side effects. Right now I'm on the lowest dose of celexa, and a once-weekly treatment of Spravato, and my side effects are almost nil (celexa is known to have low side effect incidents, but I have to be on an oral antidepressant in order to be legally allowed to take Spravato). I've tried many medications, and right now, this is what works, and I'm a little scared to shake that up right now.
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Donator — Frog bless Posted 5 years ago ( 2020/03/4 07:24:24 )

@faerie: That's very understandable. Different meds work differently on different people and it's sometimes very hard to find a regimen that works best. I will say that I also take an antidepressant along with my ADHD medication, but I also don't have a lot of side effects (except for the SWEATING from prozac which I am thankfully no longer on lol). If what you have now is working for you then keep it up.
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Donator — they/them Posted 5 years ago ( 2020/03/9 10:56:57 )
You know what phrase I hate even more than people joking about being 'so ADHD'? 'High-functioning.'

That's the phrase thrown in my face when I go ask for help from some medical/mental health professionals, or talk about being undiagnosed until I sought out a diagnosis in my late 20s because I was tired of not having access to the support I needed. Unfortunately, I don't seem to react well to medication even though my dad and my brothers seem to handle it fine.

At least my dad and brothers understand how exhausting appearing 'high-functioning' really is, but some doctors are just cruel and clueless, and don't actually understand ADHD at all, or try to tell me it can be fixed with diet, etc. Lol. I don't need to be fixed, even if that were possible, I like my brain and I just want support so I can be successful in my life. I do find that I tend to make friends with a lot of people who also have ADHD, which is a huge help when I just need to not be judged for not being neurotypical. But it still hurts when other friends make comments about things that ADHD people do, not understanding the reasons behind the behaviors, and just jumping to judgement rather than trying to be compassionate.

P.S. My brothers and I LOVED reading as kids, and I used to read books at school while the teacher was giving lessons, because I'd already finished the homework for that night while she was teaching, because I would never do homework if I actually had to take it home to work on it. Same with if an assignment was uninspiring, I could never find a way to get started, so I had either really good grades, or missing assignments, but I'd also just forget about the assignments that didn't interest me, so I didn't even know I was missing them. For this reason, I didn't want to go to college right out of highschool, but my parents insisted I did until I got too depressed and stopped going to class. Getting diagnosed allowed me to research and develop actual study strategies so I could return to school many years later and complete my degree - also it was easier to pay attention when I was a bit older because ADHD brains are a few years behind neurotypical brains in some areas. That's part of why it can be more apparent that a person has ADHD when they're an adult, since the gap in the ability to manage time, self-regulate, etc. becomes more obvious, since adults are supposed to have gotten a handle on those things to a large degree, and people with ADHD just aren't really consistently able to, without assistance.
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Donator Posted 5 years ago ( 2020/03/11 09:23:19 )
As someone with ADHD, so much THIS. My own father is one of those "everyone has anxiety" or "everyone is ocd" followed by saying we all have to deal with it so he/she/they can get over it too. The most ironic part being that I'm pretty sure my father has ADHD as well based off many similar habits and ticks we have. Of course, he would never get tested for such issues though.

ADHD is actually something I have struggled with for years, long before I even knew what it was. I was that overactive female, the one people say ADHD doesn't usually manifest as. I was that can talk for hours straight without breaking. I was that constantly being told to shut up. I was that yelling without realizing. I was that speaking a mile a minute little kid. And I was that "smart kid who is just lazy and not living up to their potential". I jumped from hobby to hobby because I got so bored so quickly. I had to be doing multiple things at once or nothing at all. I was so bored of highschool that I graduated highschool in a single year because I hyperfocused for months on school work. And all of this was before I even knew what ADHD was. It wasn't until I met my current boyfriend that it all made sense. He has a mild form of ADHD but he had mostly grown out of it as he matured. Mine only got worse into my adulthood. He finally sat me down one day and explained ADHD and so freaking much started making sense to me. I got it confirmed by a professional who knew what they were doing. Finally my constantly racing thoughts and way of doing things was making sense. There really was a method to my madness. And that last part happened recently. I'm still learning to manage. The first time I ever took medication for ADHD, I actually started crying because my racing thoughts were gone. That constant feeling of needing to do something and either always doing something or never being able to do a thing, it was gone. It's a hard change to get used to but a welcome one. So people who have no idea what it's like to live with that constant feeling of needing to go, of knowing that you need to do a simple task but you just can't, of having to say everything that's on your mind, those people really tick me off when they downplay it.
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